I’m Deeann, a small business owner living in the Pacific NW, a volleyball player and writer who has been married for almost thirty years and has two children. I create meaningful relationships, and dedicate time to things I find important. One of those BIG things is alopecia.
I used to never talk about my hair loss!
I have lived with varying forms of alopecia for over 40 years. When I was first diagnosed, a community who understood was nowhere to be found. I never met someone who looked like me, and resources and positive role models were non-existent.
If resources don’t exist, create some!
Later, when I developed alopecia universalis as an adult, I was surprised to find minimal resources, no real community, and parents of children who were living with alopecia and felt overwhelmed and unsure about where to go and what to do to help their child.
I wanted to reach people where they were in their journey of hair loss. So I published Head-On, Stories of Alopecia to let others know they weren’t alone. I released the Alopecia Life podcast to open up conversations about alopecia. I went on to speak at medical conferences and schools, and I now coach/educate/advocate for all things alopecia. I’ve just added a how-to course to help more families find solutions.
The Alopecia Roadmap has been created as a resource I wish my family and I had when I was first diagnosed. It’s been designed to be informative, easy to complete, and practical! I’m so excited to now have a course just for parents and caregivers. Course information can be found at https://www.alopecialife.com/alopecia-areata-online-course/
